Hello Everyone!
As some of you may know, my first book will be in bookstores in early November. It is called Looking Up and is about my life with Osteogenesis Imperfecta (Brittle Bone Disease). It shows my unique perspective through anecdotes and photography.
The book will be available for pre-order on this website in mid October.
For now though, here’s a little sneak peek inside the book….
Apparently I’m an Exhibit Too?
When I was about five, my aunt took my younger cousin and me to the Riverwalk one afternoon. We were just walking around, shopping, and eating snowballs when we were suddenly rushed by a bunch of very curious and enthusiastic men in doctor’s coats. Unfortunately, we were not aware that the largest orthopedic convention in the country was taking place just a few hotels down from where we stood, and that the convention was on lunch break.
These crazy doctors started coming up to me, poking me and prodding me, asking if I was an exhibit for the convention.
Well, my aunt promptly informed them, “No, she’s not an exhibit! She’s my niece!”
I honestly don’t remember it that much, but I do remember being very confused and unhappy about strangers touching me and bending my limbs.
Even doctors don’t think sometimes.